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So far Simone has created 26 blog entries.

SYMPHONY PhDs “at” ISTH 2021

On 17 – 21 July the annual International Society on Thrombosis and Haemostasis (ISTH) congress took place. The ISTH is an international congress were all new insights on both clinical and fundamental thrombosis and hemostasis research are presented. Some examples of the topics that were discussed are the use of the new von Willebrand Disease guidelines, treatment with new factor VIII replacement therapies, treatment based [...]

2021-07-29T11:49:50+00:00July 29th, 2021|News|


  On the 8th of June, thanks to the PhD committee (Minka, Tine and Bas) who organized a fun-get to know each other better-meeting in Leiden, the SYMPHONY PhD students were finally able to meet face to face after months of separation caused due to the COVID pandemic. They indulged themselves [...]

2021-07-01T09:15:42+00:00July 2nd, 2021|News|

SYMPHONY Theme Treatment meeting: Digitalisering

Een belangrijk onderdeel van het SYMPHONY-consortium is de digitalisering van de zorg voor patiënten met een aangeboren bloedstollingsstoornis. Digitale toepassingen spelen namelijk een steeds grotere rol in het monitoren van ziekte, het voorspellen van ziekte en van symptomen, en in het uitvoeren van behandelingen.   In de workpackages (WP) 5 (Shannon van Hoorn, waardegedreven zorg), WP6 (Alexander Janssen, PK/PD-algoritmes en webportal) en WP7 (Martijn Brands, Persoonlijke Gezondheidsomgeving) beoogt SYMPHONY om [...]

2021-07-01T09:25:31+00:00July 1st, 2021|News|

Evidence for capped dosing of desmopressin in Von Willebrand disease: Quantification of the relationship between desmopressin plasma concentration and Von Willebrand factor activity by simulations

The last couple of months we have been working on quantification of the relationship between desmopressin plasma concentration and Von Willebrand factor activity within the SYMPHONY consortium / workpackage 6 (OPTI-CLOT and To WiN studies). Desmopressin is the treatment of choice for the prevention and treatment of bleeding in patients with Von Willebrand disease. [...]

2021-06-01T12:49:46+00:00June 1st, 2021|News|

NVTH PhD course 12-14 April

Every year, the NVTH (Dutch association of thrombosis and hemostasis) organizes a symposium and a course for PhD students on a specific topic within the field. This year, the topic of the course was bleeding disorders. Normally this course would have been given in 2020 in Koudekerke, but due to Covid-19 restrictions, the course was [...]

2021-05-10T08:32:10+00:00May 10th, 2021|News|

Theme Treatment meeting – Patiënt participatie: Van klankbord naar samen de goede toon inzetten

Op vrijdag 5 maart heeft Shannon (PhD WP05) de Theme Treatment Meeting georganiseerd rondom het thema patiënt participatie. Shannon van Hoorn (PhD WP05) Na het welkomstwoord van Hester Lingsma, als WP leader van WP05 werd de per 1 februari gestarte PhD van WP09 geïntroduceerd en welkom geheten, nogmaals [...]

2021-03-30T10:14:33+00:00March 30th, 2021|News|
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