The aim of the project “SYMPHONY: Orchestrating personalized treatment for patients with bleeding disorders” is to establish best treatment choice for each individual with a bleeding disorder based on bleeding tendency. This will be achieved by improving current diagnostic tests to measure hemostatic potential and by performing fundamental research [...]
Interview Shannon van Hoorn Born: in Utrecht, The Netherlands Lives in Rotterdam Studied: BSc Health Sciences, MSc Health Sciences and MSc Business Administration at the University of Twente First job: Project employee at the Antoni van Leeuwenhoek hospital in Amsterdam Sports: I do fitness myself, but [...]
On 17 – 21 July the annual International Society on Thrombosis and Haemostasis (ISTH) congress took place. The ISTH is an international congress were all new insights on both clinical and fundamental thrombosis and hemostasis research are presented. Some examples of the topics that were discussed are the use of the new von Willebrand Disease guidelines, treatment with new factor VIII replacement therapies, treatment based [...]
Interview Ryanne Arisz Born: in 1996, Rotterdam, The Netherlands Lives in Rotterdam Studied: Biomedical Sciences at the University of Amsterdam First job: PhD in WP03 Sports: I have played basket for 11 years. I stopped going to University, maybe I'll start it up again, being back [...]
On the 8th of June, thanks to the PhD committee (Minka, Tine and Bas) who organized a fun-get to know each other better-meeting in Leiden, the SYMPHONY PhD students were finally able to meet face to face after months of separation caused due to the COVID pandemic. They indulged themselves [...]
Een belangrijk onderdeel van het SYMPHONY-consortium is de digitalisering van de zorg voor patiënten met een aangeboren bloedstollingsstoornis. Digitale toepassingen spelen namelijk een steeds grotere rol in het monitoren van ziekte, het voorspellen van ziekte en van symptomen, en in het uitvoeren van behandelingen. In de workpackages (WP) 5 (Shannon van Hoorn, waardegedreven zorg), WP6 (Alexander Janssen, PK/PD-algoritmes en webportal) en WP7 (Martijn Brands, Persoonlijke Gezondheidsomgeving) beoogt SYMPHONY om [...]
NVHP Faktor editie Mei 2021 De volledige Faktor kan gelezen worden op de NVHP website
NVHP Faktor editie mei 2021 De volledige Faktor kan gelezen worden op de NVHP website
The last couple of months we have been working on quantification of the relationship between desmopressin plasma concentration and Von Willebrand factor activity within the SYMPHONY consortium / workpackage 6 (OPTI-CLOT and To WiN studies). Desmopressin is the treatment of choice for the prevention and treatment of bleeding in patients with Von Willebrand disease. [...]
Every year, the NVTH (Dutch association of thrombosis and hemostasis) organizes a symposium and a course for PhD students on a specific topic within the field. This year, the topic of the course was bleeding disorders. Normally this course would have been given in 2020 in Koudekerke, but due to Covid-19 restrictions, the course was [...]
